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Overcoming Body Dysmorphic Disorder - My Story of Living With BDD

"It’s not what you look at that matters, it’s what you see."
~ Henry David Thoreau

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This is the Story of My Life Living With Body Dysmorphic Disorder

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How do I Know if I Have BDD? Body Dysmorphic Disorder Test – The BDDQ

November 5, 2012 By Stephen

BDD is Fairly Common

How Common Is BDD?

Studies Have Found That BDD Occurs in Approximately . . . .

  • 1%–2.4% of adults in the general population .
  • 2.2%–13% of students.
  • 13%–16% of patients who are psychiatrically hospitalized.
  • 14%–42% of outpatients with atypical major depression.
  • 11%–12% of outpatients with social phobia.
  • 3%–37% (average of 17%) of people with obsessive compulsive disorder (OCD).
  • 39% of hospitalized patients with anorexia nervosa.
  • 9%–14% of patients seeking treatment from a dermatologist.

BDD is Under-recognized

Health care professionals, however, often overlook BDD. As a result, BDD sufferers may not find out that they have the disorder, and treatment may not succeed because it doesn’t target BDD. In the two studies of psychiatric inpatients, none of the patients who had BDD had raised their BDD symptoms with their doctor or received the diagnosis while in the hospital.

In a study of 200 people with BDD, more than half of those who’d been treated with psychiatric medication had never revealed their BDD symptoms to their doctor, even though their symptoms were a major problem. Other studies have similarly found that BDD usually goes undiagnosed, even among people who are receiving mental health treatment.

Secrecy and Shame

BDD is often a secret disorder. Sufferers don’t reveal their appearance concerns, and health professionals often don’t ask. Many patients I’ve seen have never mentioned their appearance concerns to anyone at all, not even their spouse or closest friend. And many who’ve been in treatment with a mental health professional haven’t revealed their symptoms, even though they’re a serious problem. It takes courage to mention BDD concerns and discuss them with someone else.

Many people with BDD are too ashamed to raise their appearance concerns. If a friend, family member, or health care professional doesn’t ask if the person has such concerns, the sufferer may not reveal them. Reasons for secrecy and shame include the following:

  • Fear of being negatively judged. BDD can be confused with vanity, and some sufferers worry they’ll be considered superficial, silly, or vain, so they keep their worries to themselves;
  • Worry that once the perceived defect is mentioned, others will notice it and scrutinize it even more, causing more embarrassment and shame;
  • Fear that disclosure of the worry will be met with reassurance that the BDD sufferer looks fine.

Many people with BDD interpret this response to mean that they were foolish to have mentioned it, or that their emotional pain isn’t being taken seriously or understood—and they may not mention it again.

You can download this questionnaire in MS Word or PDF format here.

Screening Questions for BDD – The Body Dysmorphic Disorder Questionnaire (BDDQ)

You’re likely to have BDD if you give the following answers on the BDDQ:

  • Question 1: Yes to both parts
  • Question 3: Yes to any of the questions 
  • Question 4: Answer b or c 

Body Dysmorphic Disorder Questionnaire (BDDQ) for Adults

Name  ___________________________________

This questionnaire assesses concerns about physical appearance. Please read each question carefully and circle the answer that best describes your experience. Also write in answers where indicated.

Are you very concerned about the appearance of some part(s) of your body that you consider particularly unattractive?   Yes   No

  • If yes: Do these concerns preoccupy you? That is, you think about them a lot and wish you could think about them less?   Yes   No
  • If yes: What are they?___________________________________
    • Examples of areas of concern include: your skin (e.g., acne, scars, wrinkles, paleness, redness); hair (e.g., hair loss or thinning); the shape or size of your nose, mouth, jaw, lips, stomach, hips, etc.; or defects of your hands, genitals, breasts, or any other body part.
  • If yes: What specifically bothers you about the appearance of these body part(s)? (Explain in detail): ___________________________________

If you answered “No” to either of the above questions, you are finished with this questionnaire. Otherwise please continue.

Is your main concern with your appearance that you aren’t thin enough or that you might become too fat?   

  • Yes
  • No

What effect has your preoccupation with your appearance had on your life?

  • Has your defect(s) caused you a lot of distress or emotional pain?   Yes   No
  • Has it significantly interfered with your social life?   Yes   No
  • If yes: How? ___________________________________
  • Has your defect(s) significantly interfered with your school work, your job, or your ability to function in your role (e.g., as a homemaker)?   Yes   No
  • If yes: How?___________________________________
  • Are there things you avoid because of your defect(s)?   Yes   No
  • If yes: How? __________________________________

How much time do you spend thinking about your defect(s) per day on average? (add up all the time you spend) (circle one)

  • (a) Less than 1 hour a day
  • (b) 1–3 hours a day
  • (c) More than 3 hours a day

On the BDDQ

  • Question 1 establishes whether preoccupation is present.
  • Question 3 determines whether it causes significant distress or impairment in functioning.
  • Question 4 is useful, even though the BDD diagnostic criteria don’t require that the perceived defect be thought about for a specified amount of time a day. If you spend at least 1 hour a day thinking about perceived appearance flaws, the diagnosis is more likely. But if it’s less than an hour a day, in total, this probably isn’t enough time or preoccupation to fulfill criterion 1 for the diagnosis.

A Note of Caution about the BDDQ:

It’s intended to screen for BDD, not diagnose it. What this means is that the BDDQ can suggest that BDD is present but can’t necessarily give a firm diagnosis. The diagnosis is ideally determined by a trained clinician in a face-to-face interview. There are several reasons for this. First, clinical judgment should be used to confirm that:

  1. Answers on the BDDQ (a self-report questionnaire) indicate the presence of a disorder (for example, that any distress or impairment reported on the questionnaire is problematic enough to warrant a psychiatric diagnosis).
  2. The physical defect is nonexistent or slight; and
  3. The appearance concerns aren’t better accounted for by an eating disorder. A “yes” answer to question 2 raises the possibility that an eating disorder might be a more accurate diagnosis.
This post and the material herein was adapted from: 

Phillips, Katharine A. (2009-01-12). Understanding Body Dysmorphic Disorder. Oxford University Press.

Filed Under: Diagnosis of Body Dysmorphic Disorder (BDD), Overcoming Body Dysmorphic Disorder Tagged With: BDD, BDDQ, Body, Body Dysmorphic Disorder, Body Image, diagnosis, How do I know, Psychology, questionairre, test

Body Dysmorphic Disorder – Cognitive Behavioral Therapy – Exposure Worksheet

November 4, 2012 By Stephen

Here is the exposure worksheet I adapted from Feeling Good about the Way You Look: A Program for Overcoming Body Image Problems.

I have included an example of a completed CBT exposure worksheet below as well.

I hope to complete some of these exercises on line over the next several weeks. If you happen upon this post feel free to do one of these exposure worksheets with me in the comments section. I will be happy to help.

Exposure Worksheet – Cognitive Behavioral Therapy for BDD

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Completed Exposure Worksheet Sample – Cognitive Behavioral Therapy for BDD

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I you haven’t already, please read and follow the guidelines from Feeling Good about the Way You Look: A Program for Overcoming Body Image Problems.

It is an amazing book that I recommend along with counseling. It may work well alone if you are highly motivated and organized!

 

Filed Under: Feeling Good About The Way You Look, Overcoming Body Dysmorphic Disorder, Treatment of Body Dysmorphic Disorder (BDD) Tagged With: BDD, Body Dysmorphic Disorder, CBT Cognitive Behavioral Therapy, Cognitive Behavioral Therapy, Exposure, Therapy, Treatment of Body Dysmorphic Disorder (BDD), Worksheet

The Best Books for Treating and Understanding Body Dysmorphic Disorder

November 3, 2012 By Stephen

Here is my list of the best books on the subject of Body Dysmorphic Disorder.  There is other literature which focuses more on the topic of body image that I will discuss in a later post.

My Favorites

[easyazon_link asin=”0195379403″ locale=”US” new_window=”default” tag=”4hourlife00-20″ add_to_cart=”no” cloaking=”default” localization=”default” nofollow=”default” popups=”default”]Understanding Body Dysmorphic Disorder[/easyazon_link]by Katherine Phillips, M.D.

[easyazon_image add_to_cart=”no” align=”left” asin=”0195379403″ cloaking=”default” height=”160″ localization=”default” locale=”US” nofollow=”default” new_window=”default” src=”http://ecx.images-amazon.com/images/I/41EPnEUr9pL._SL160_.jpg” tag=”4hourlife00-20″ width=”112″]A Wonderful, concise and essential book to understand the diagnosis and treatment of Body Dysmorphic Disorder. It is a fairly short and easy read, that is full of top-notch information!Material is complete and presented in an organized and useful way. The understanding enabled for both client and therapist is one of the main traits of this book. And the author is obviously committed to the betterment/healing of her clients
[easyazon_link asin=”1572307307″ locale=”US” new_window=”default” tag=”4hourlife00-20″ add_to_cart=”no” cloaking=”default” localization=”default” nofollow=”default” popups=”default”]Feeling Good about the Way You Look: A Program for Overcoming Body Image Problems[/easyazon_link] by Sabine Wilhelm, Ph.D.

[easyazon_image add_to_cart=”no” align=”left” asin=”1572307307″ cloaking=”default” height=”160″ localization=”default” locale=”US” nofollow=”default” new_window=”default” src=”http://ecx.images-amazon.com/images/I/51FiFo3cq0L._SL160_.jpg” tag=”4hourlife00-20″ width=”107″]This is a wonderful book!  Written by the Director of the MGH OCD and Related Disorders Program, and Founder of the Body Dysmorphic Disorder Clinic, this book offers individuals suffering from Body Dysmorphic Disorder with critical tools to understand BDD and to bring their disorder under control.

The step by step approach detailed in the book is exactly what is needed for patients and clinicians alike. I have enthusiastically been recommending it to all of my clients who have BDD, and to colleagues interested in learning more about it. This book offers new hope to the millions of people worldwide who live with this troubling, but treatable disorder.

[easyazon_link asin=”1572242930″ locale=”US” new_window=”default” tag=”4hourlife00-20″ add_to_cart=”no” cloaking=”default” localization=”default” nofollow=”default” popups=”default”]The BDD Workbook: Overcome Body Dysmorphic Disorder and End Body Image Obsessions[/easyazon_link] by James Claiborn, Ph.D. and Cherry Pedrick, R.N.

[easyazon_image add_to_cart=”no” align=”left” asin=”1572242930″ cloaking=”default” height=”160″ localization=”default” locale=”US” nofollow=”default” new_window=”default” src=”http://ecx.images-amazon.com/images/I/417CIWn0qSL._SL160_.jpg” tag=”4hourlife00-20″ width=”124″]This workbook really delves into the thought processes of a person who suffers from this exhausting illness. The worksheets and exercises really cause you to challenge the beliefs which have been engrained in your memory for decades.I would highly recommend this workbook for anyone who is self directed and able to work through the exercises on their own.
[easyazon_link asin=”0195167198″ locale=”US” new_window=”default” tag=”4hourlife00-20″ add_to_cart=”no” cloaking=”default” localization=”default” nofollow=”default” popups=”default”]The Broken Mirror: Understanding and Treating Body Dysmorphic Disorder[/easyazon_link] by Katherine Phillips, M.D.

[easyazon_image add_to_cart=”no” align=”left” asin=”0195167198″ cloaking=”default” height=”160″ localization=”default” locale=”US” nofollow=”default” new_window=”default” src=”http://ecx.images-amazon.com/images/I/417CpMIe55L._SL160_.jpg” tag=”4hourlife00-20″ width=”100″]KatherinePhillips other book “Understanding Body Dysmorphic Disorder” is a more concise and consolidated read, it is also newer.But, if you want a more in-depth look into BDD and it’s treatment by the worlds leading expert, then “The Broken Mirror” is a must read. Probably still considered the gold standard.

Filed Under: Literature, Overcoming Body Dysmorphic Disorder, Treatment of Body Dysmorphic Disorder (BDD) Tagged With: BDD, Body, Body Dysmorphic Disorder, Books, Image, Katherine Phillips, Literature, Reading, The Best of, Treatment of Body Dysmorphic Disorder (BDD)

Cognitive-Behavioral Strategies for Improving Insight in Body Dysmorphic Disorder

November 2, 2012 By Stephen

Here are several cognitive-behavioral strategies that are described by the San Francisco Bay Area Center for Cognitive Therapy to improve insight into your BDD

Self-Monitoring

I ask the individual to monitor how his BDD symptoms vary over time. Every hour he rates (0-10) how strongly he believes, for example, that his nose is too large. He also notes what was happening at the time and how he was feeling. We then plot on graph paper the strength of the person’s belief, where 10 is “my nose is too large” and 0 is “my nose is fine.” Sometimes seeing his belief fluctuate by the hour helps the client recognize that he can’t always trust his view of himself.

Cognitive Restructuring

Individuals with BDD have distorted beliefs about their appearance, such as “I have to look perfect,’ or, “If I don’t look good, I’ll be rejected and alone.” Teaching individuals to identify and restructure these distorted beliefs can sometimes help the person gain enough insight to try other bognitive-behaviroal strategies.

Cognitive Distancing

Individuals with BDD have difficulty accepting that they have BDD because that would mean their appearance is okay. One young man who told me session after session that he did not have BDD. What he had was a left ear that was lower than the right ear. He insisted that only plastic surgery would correct the problem.

I commiserated with him and said that plastic surgery was certainly a logical solution to the problem of a true flaw in his appearance but that it was not a solution to BDD. The problem as I saw it was that every time his BDD flared up he bought into the belief that his appearance was flawed. I then taught him a cognitive distancing strategy described by Jeffrey Schwartz in his book titled Brain Lock: Free Yourself from Obsessive-Compulsive Behavior.

Schwartz describes the 4 Rs. I’ll cover the first three here. The first R is “relabel.” The client was taught to relabel any concern, thought, or belief about his appearance as a feature of the BDD, not proof of a physical flaw. He was then to use the second R (reattribute) to attribute every aspect of his experience (his thoughts, feelings, urges, and behaviors) to the BDD. He was then instructed to refocus (3rd R) or distract himself from the BDD thoughts.

An “as if” Attitude

At times I have asked a client to act “as if” he looks okay even if he doesn’t believe it. An “as if” attitude is particularly helpful when trying to get a client to try an exposure exercise that, because of his poor insight, he believes is useless.

I’ve asked clients to use the “as if” attitude to stay at a party when they have a strong urge to leave, to go to social situations when they are inclined to remain home alone, or to stop looking in a mirror when they feel that they must continue. One of my clients used this strategy to go to a party that he wanted to avoid by acting “as if” he was okay and “as if” going to the party would help his BDD and his depression. Once at the party, he was able to use his CB strategies to manage his BDD and that as the evening progressed, he was much less worried about his appearance.

Filed Under: Overcoming Body Dysmorphic Disorder, Treatment of Body Dysmorphic Disorder (BDD) Tagged With: BDD, Body Dysmorphic Disorder, CBT, Cognitive Behavioral Therapy, Depression, Insight

Augmenting a Serotonin Reuptake Inhibitor for the Treatment of BDD

November 2, 2012 By Stephen

Follow this link for a list of Selective Serotonin Reuptake Inhibitors used for the treatment of Body Dysmorphic Disorder.

Augmenting a SSRI for the Treatment of Body Dysmorphic Disorder

The only data on the effectiveness of SRI augmentation in BDD comes from the clinical practice of Katharine A Phillips and her study of augmentation of fluoxetine (Prozac) with pimozide.

So it really isn’t known which augmentation approaches are best. However, a number may be worth trying.

The table below shows the augmenting medications Dr. Phillips most often used for BDD, typical dosing ranges, and average doses.

It is best to augment the SRI only after you have tried it for at least 12 weeks and at a high enough dose. You should do this because the SRI may work well enough by itself. This approach can keep the medication regimen simple.

Sometimes, however, it makes sense to augment the SRI sooner, before the SRI alone has been adequately tried. This may be reasonable, for example, for someone with very severe BDD. Or the augmenting medicine may be more helpful than an SRI alone for certain symptoms (e.g., agitation) or a co-occurring disorder other than BDD.

Table: Augmentation Medications for Body Dysmorphic Disorder (BDD)

Potential SRI AUGMENTATION MEDICATIONS FOR BDD

Table: Phillips, Katharine A. (2009-01-12). Understanding Body Dysmorphic Disorder (Kindle Locations 4227-4233). Oxford University Press. Kindle Edition.

Buspirone Buspirone (Buspar)

An antianxiety medication with effects on serotonin, is sometimes used as an augmenting agent for depression and OCD. Unlike other antianxiety medications, buspirone is generally not sedating and has no potential for causing physical dependence or addiction. In clinical practice, adding buspirone to an SRI has been effective for about one-third of patients. The amount of improvement is fairly large.

People with delusional BDD appear as likely to improve with buspirone as those with nondelusional BDD. Buspirone augmentation is appealing because this medicine typically has so few side effects. It may also improve coexisting anxiety and possibly depressive symptoms as well. you can also treat with buspirone alone for those who prefer not to take an SRI. In studies patients experienced some improvement in BDD symptoms, although none had the robust response that can occur with an SRI.

Levetiracetam (Kepra)

Levetiracetam (Keppra) is a medication that’s marketed for the treatment of seizures. In a 12-week open-label study of 17 people taking Keppra, 53% substantially improved. Of the five patients who had levetiracetam added to an SRI that they were already taking, two got better. Of the 12 patients who took levetiracetam without an SRI, 7 got better.

While the effectiveness of this medication for BDD needs further research, these preliminary findings are encouraging and suggest that levetiracetam may be worth trying in addition to an SRI (or without an SRI; see further discussion below).

Clomipramine (Anafranil)

It is possible to combine the SRI clomipramine (Anafranil) with one of the selective SRIs (SSRIs: fluvoxamine [Luvox], fluoxetine [Prozac], paroxetine [Paxil], citalopram (Celexa), escitalopram (Lexapro), or sertraline [Zoloft]) if improvement isn’t sufficient with an adequate trial of an SSRI alone.

Some patients do better with an SSRI/clomipramine combination than with either medication alone. However, the dosing must be done very carefully. The SSRIs can greatly increase clomipramine blood levels, which can be highly toxic at very high levels. Therefore, a lower dose of clomipramine should generally be used when it’s combined with an SSRI than when clomipramine is used without an SSRI.

If a patient is already on an SSRI, it is best to begin by adding only 25 mg a day of clomipramine and then gradually raising the dose, depending on the response and clomipramine blood level. Clomipramine levels should always be checked when this medication is combined with an SSRI to ensure that the dose isn’t too high. Also, patients should be monitored for a rare syndrome called serotonin syndrome. Studies have shown that up to 44% of patients substantially improved when clomipramine was added to an SSRI or vice versa.

This response rate was somewhat higher than for other augmentation strategies, although the magnitude of the response wasn’t quite as large as for some other strategies. Nonetheless, because clomipramine is an excellent antidepressant, it may be an appealing augmentation choice for people who are severely depressed. Although it is generally recommended that you try an augmenting agent for 6 to 8 weeks, it is worth it to try clomipramine for 12 weeks before deciding whether it’s working well enough.

It is not a good idea to combine clomipramine with an SSRI without first attempting to optimize a trial with just one of them.

Other Antidepressants

Antidepressants other than clomipramine can be added to an SSRI. These medications include venlafaxine (Effexor) and bupropion (Wellbutrin). Some patients do well with this approach. Some patients with severe depression who hadn’t responded to lots of medications did particularly well on 400 mg per day of bupropion (Wellbutrin) plus 60 to 100 mg per day of citalopram (Celexa). It’s possible that adding bupropion (Wellbutrin), which doesn’t directly affect serotonin, is more effective for people whose depression doesn’t seem to be largely due to BDD, but this is speculative at this point.

Care should be taken when combining venlafaxine with an SSRI because of the risk of serotonin syndrome (although the risk is low, and I’ve never seen it occur with this combination of medications).

Neuroleptics

The neuroleptics (antipsychotics) are a class of medicines often used to treat psychotic symptoms; they are also effective for a broad range of other symptoms (e.g., agitation and anxiety). (Because some of the newer ones are effective for so many different kinds of symptoms, they are now officially classified “psychotropic agents”—meaning they have effects on psychiatric symptoms). These medications are potentially promising SRI augmenters for BDD.

First, they are effective SRI augmenters in OCD and depression. Second, many people with BDD have prominent delusions of reference and delusional conviction about the perceived appearance defect; neuroleptics are the best treatment for delusional thinking in other disorders. There are two types of neuroleptics: “typical” (or “first generation”) and “atypical” (or “second generation”). Although neither type has been well studied in BDD, the atypicals appear more promising. Some patients have responded well when we added atypical neuroleptics such as ziprasidone (Geodon), olanzapine  (Zyprexa), or risperidone (Risperdal) to an SRI. Ziprasidone (Geodon) seems especially promising. These medications can diminish severe distress and agitation resulting from BDD.

For patients with these kinds of severe symptoms I may combine an atypical neuroleptic with an SRI from the beginning of treatment. Using an atypical neuroleptic early in treatment can provide quicker relief than the SRI alone—producing a calming effect (but not usually a sedating effect if the dosing is done correctly). This can help the person function better, and in some cases prevent hospitalization. However, only one study has adequately studied a neuroleptic as an SRI augmenter. This study tested pimozide (Orap), a typical neuroleptic that is effective for Tourette’s disorder (characterized by repetitive, uncontrollable verbal utterances or physical movements known as tics, which are similar to the compulsive behaviors of OCD). Pimozide is an effective SRI augmenter in OCD, and it has long had the reputation (which was based more on word of mouth than scientific studies) of being uniquely effective for delusional BDD and certain other types of delusional disorder.

Methylphenidate

Some patients (10%–20% in my experience) improve significantly when methylphenidate (Ritalin) or another stimulant is added to an SRI. It is best to use this approach when patients are severely depressed and fatigued, because the stimulant can improve depressed mood and energy as well as BDD. One concern, however, is that stimulants are potentially habit forming and are best not used in people at risk for substance abuse or dependence. Because stimulants can potentially worsen tics, there’s a theoretical concern that they might worsen skin picking (which has some features in common with tics), but this is a rare problem.

Lithium

Lithium is a natural substance that’s best known as a treatment for bipolar disorder (manic depressive illness). However, it’s also effective for a broad range of other disorders and symptoms (e.g., mood swings, depression, aggressive behavior, suicidal thinking). About 20% of BDD patients substantially improve when lithium is added to an SRI.

Benzodiazepines

Benzodiazepines (e.g., clonazepam [Klonopin], lorazepam [Ativan]) are used primarily to treat anxiety and insomnia. Strictly speaking, they are not considered augmenting agents, because they can be added to an SRI at any point during treatment—whenever they’re needed.

Benzodiazepines can be very helpful for severe distress, anxiety, or agitation if an SRI doesn’t adequately diminish these symptoms or before an SRI has had a chance to work. Benzodiazepines can also greatly improve poor sleep. They can be used temporarily or over the longer term. Temporary use of benzodiazepines during the first few weeks of treatment (while waiting for an SRI to work) can be especially valuable for people who are severely anxious, agitated, unable to sleep, or suicidal.

Benzodiazepines are potentially habit forming, but in my experience, few people with BDD abuse them.

Cognitive-Behavioral Therapy

If medication doesn’t work well enough, you should strongly consider adding CBT to the medication. Cognitive-behavioral therapy (CBT) can also be used along with medication from the start of treatment. Most of the next chapter is devoted to CBT.


Resources:

Phillips, Katharine A. (2009-01-12). Understanding Body Dysmorphic Disorder Oxford University Press.

Filed Under: Overcoming Body Dysmorphic Disorder, Treatment of Body Dysmorphic Disorder (BDD) Tagged With: Augmentation, Augmenting, BDD, Body Dysmorphic Disorder, Selective Seratonin Reuptake Inhibitor, SSRI, Treatment of Body Dysmorphic Disorder (BDD), Understanding BDD

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