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Overcoming Body Dysmorphic Disorder - My Story of Living With BDD

"It’s not what you look at that matters, it’s what you see."
~ Henry David Thoreau

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This is the Story of My Life Living With Body Dysmorphic Disorder

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DISQUIETING

By

Forceful Feelings [1]

I can feel it on my face. The deep, open crevice of  my scar.

I can feel it stretching, tugging, retching.

For the first several months after the injury I attributed this to the process of healing and the formation of new cartilage. But now I know it is in my mind.

How do I know this?

Because I feel it at times when I am my most vulnerable, when I am my most self conscious.  Otherwise it is just there not bothering anyone.

We have been on vacation as a family for the 4th of July weekend. And here at the resort I have had a break from my scar.

I woke up twice this week and the thought didn’t even cross my mind, I just woke up, threw on a hat and interacted with the world.

And you know what? No one was horrified.

It wasn’t until I returned back to our room that I realized I had forgotten about my scar.

For the first time I didn’t notice peoples eyes gravitating towards it, for the first time I had a conversation without thinking about it.

SO HOW THE HELL DO I GET RID OF IT?

Disqueting

The thing that upsets me most about BDD is that no matter how much I know that it is in my mind, I cannot escape it.

Especially when I can actually feel it.

I was having a nice conversation at a nearby winery with my wife and a couple who was visiting the states from the Netherlands. It was at this point in time I could feel my scar, it started when I took my hat off, when I knew that my facial defect would catch the overhead lights. It is like a trigger for me.

And I could feel it tugging at me, I could feel all my self hate and all the emotion pouring into the scar. And it sat there like a curse on me. My thoughts wondered, I dodged the light and I scanned the faces of those around me. “Great” I thought, “they don’t seem to notice I must be OK.” So I reached for some more wine.

I am drinking it now as I write this, and alone, here in the hotel room I feel the relief that wine and seclusion can give me. A moment of calm… Disquieting.

THE GREAT ESCAPE

Solitude On Indigo Lake

Here on vacation, here at the lake life is slow. The days are hot, we just relax and take it all in.

I have had time to let my mind relax as well, to give all my attention to my family, where it belongs.

I wonder why my family still loves me with this scar, but I am ever more thankful. I am thankful for my wife’s love and my children’s hugs and kisses. I think about those who suffer from BDD who may lack this family support, and I worry about them.

Note: If this is you, please know that I love you, I hear your pain through these pages, and please know that there is healing for us, we will do this together.

I am thankful for these mornings when I wake up without the concerns that weigh me down constantly. It give me hope that somewhere in this mess there is a light at the end of the tunnel.

One where I will wake up and not judge myself so harshly.

One where I can live in the hearts and minds of others and away from the prison that is my mind, the gruesome tug of body dysmorphic disorder.

Books Worth Reading

Shattered Image: My Triumph Over Body Dysmorphic Disorder

This is a wonderful book written by Brian Cuban – The brother of famed billionaire and tech mogul Mark Cuban from The Shark Tank. It is great to finally hear a man’s voice in this space. The book is honest, timely, and gives practical advice that we can all use to overcome BDD. The book is also available in the Kindle Lending library which is how I found it. This is a must-read.
The Broken Mirror: Understanding and Treating Body Dysmorphic Disorder

A fantastic, concise, and essential book to understand the diagnosis and treatment of Body Dysmorphic Disorder. It is a fairly short and easy read, that is full of top-notch information! Material is complete and presented in an organized and useful way. The understanding enabled for both client and therapist is one of the main traits of this book. And the author is obviously committed to the betterment/healing of her clients.
Feeling Good about the Way You Look A Program for Overcoming Body Image Problems

This is a wonderful book!  Written by the Director of the MGH OCD and Related Disorders Program, and Founder of the Body Dysmorphic Disorder Clinic, this book offers individuals suffering from Body Dysmorphic Disorder with critical tools to understand BDD and to bring their disorder under control. The step by step approach detailed in the book is exactly what is needed for patients and clinicians alike. I have enthusiastically been recommending it to all of my clients who have BDD, and to colleagues interested in learning more about it. This book offers new hope to the millions of people worldwide who live with this troubling, but treatable disorder.
The BDD Workbook: Overcome Body Dysmorphic Disorder and End Body Image Obsessions

This workbook really delves into the thought processes of a person who suffers from this exhausting illness. The worksheets and exercises really cause you to challenge the beliefs which have been ingrained in your memory for decades. I would highly recommend this workbook for anyone who is self-directed and able to work through the exercises on their own.

About Stephen

My name is Stephen and I was officially diagnosed with BDD in October of 2012. I have lived with it my whole life. This blog is my story, my shame, and my path to recovery. It starts on Day 1 of my new life. To live, and love myself, to teach others how to do the same, and learn more about what it means to live with body dysmorphic disorder. Here are some resources that I use...

Comments

  1. Amelia says

    Stephen,

    I’m so touched by your love and kindness. This BDD has blessed you with great empathy for others coping with this too. I feel alone and need help, but you have brought me comfort today.

    • Stephen says

      Thank you Amelia, please don’t feel alone, there is a world out there with open arms that is ready to embrace you.

      Stephen

  2. Kelli says

    Wow, the senecio that you describe talking to the couple under the overhead light describes my social anxiety to a tee. The only difference is I don’t have BDD. I have an extremely noticeable scar on my face that frequently gets me unwanted attention. I don’t know what to do except hide my face behind long hair. But this makes me feel like a prisoner.

    • Stephen says

      Hi Kelli,

      We are both prisoners to our own shame. The difficulty is in knowing that we hold the key, but being too afraid to use it for fear of what could be. Somedays I feel strong and twist the lock and walk out of my cell, other days I lock myself in – because it just feels safer that way 🙂 At least we can find some comfort in knowing that we are in control, and because of this we are still very alive and very capable of fully engaging in life and enjoying this amazing gift of life we have been given.

      Bless you on your journey!

      Stephen