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Overcoming Body Dysmorphic Disorder - My Story of Living With BDD

"It’s not what you look at that matters, it’s what you see."
~ Henry David Thoreau

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This is the Story of My Life Living With Body Dysmorphic Disorder

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Accutane and Body Dysmorphic Disorder

October 1, 2017 By Stephen

During my sophomore year in college, I was placed on Accutane (Isotretinoin) for the treatment of what I believed to be severe, scarring acne.

How severe it was is debatable, most people told me it was mild, but I convinced my mom to take me to the dermatologist to see what could be done.

By this time I had already completed months worth of minocycline, an antibiotic which cleared my acne miraculously for about three months, then once stopped it flared up to new and unprecedented levels.

I probably owned a portion of the makers of Clearasil at this time as well. I would wash my face 5-6 times per day. I would apply topical products religiously; I would use cleaning scrubs . . . Anything I could find that I thought would make a difference.

By the time I hit college, my hormones were racing, and my acne had become much more severe. I drank a lot of dairy but was told not to each chocolate and to avoid masturbating. Neither of which seemed reasonable at the time.

I would obsess about my acne, something which I mentioned in my very first article on the blog; this was probably when I made the change from normal body image concerns to full-blown BDD.

Fast-forward to Accutane. A medicine I was placed on my sophomore year in college, the following 6 months would be some of the deepest and darkest days of my life. Ones, that would lead me to the edge of suicide and back.

Luckily I had a strong support system or I wouldn’t be here to talk about it.

Now Accutane and its generics are being pulled off the market secondary to fears of the products link to inflammatory bowel disease (IBD).

But beyond IBD how about BDD?

For me, it almost meant my life.

People with BDD will do anything to “fix” a perceived imperfection. I would have jumped off a bridge if there was a chance for survival and it would have helped improve my skin.

Accutane can be life-changing, it can lead to significant improvement of scarring acne in 70% of those who use it for 6 months. For me, it just made my obsessions and my depression much worse. I will likely get skin cancer someday because it causes sun sensitivity and in my teens and twenty’s I accepted the risk of cancer in my 40’s if I could avoid applying sunblock.

Beyond birth control, Accutane and the prescribers of it need to make sure their patient is mentally capable of taking this medicine. Screening for BDD in patients can start with a mirror test. Hold up a mirror and see how your patient reacts. To this day, I would be horrified. I assume many of those who suffer from BDD are the same.

Acne and BDD can run side by side, the black box warning of depression that accompanies Accutane should be taken more seriously in this population. I assume that a significant percentage of those taking Accutane have risk factors of BDD.

Responsible prescribing is important in this fragile population.

Filed Under: Overcoming Body Dysmorphic Disorder Tagged With: Accutane, Isotretinoin

Books Worth Reading

Shattered Image: My Triumph Over Body Dysmorphic Disorder

This is a wonderful book written by Brian Cuban – The brother of famed billionaire and tech mogul Mark Cuban from The Shark Tank. It is great to finally hear a man’s voice in this space. The book is honest, timely, and gives practical advice that we can all use to overcome BDD. The book is also available in the Kindle Lending library which is how I found it. This is a must-read.

The Broken Mirror: Understanding and Treating Body Dysmorphic Disorder

A fantastic, concise, and essential book to understand the diagnosis and treatment of Body Dysmorphic Disorder. It is a fairly short and easy read, that is full of top-notch information! Material is complete and presented in an organized and useful way. The understanding enabled for both client and therapist is one of the main traits of this book. And the author is obviously committed to the betterment/healing of her clients.

Feeling Good about the Way You Look A Program for Overcoming Body Image Problems

This is a wonderful book!  Written by the Director of the MGH OCD and Related Disorders Program, and Founder of the Body Dysmorphic Disorder Clinic, this book offers individuals suffering from Body Dysmorphic Disorder with critical tools to understand BDD and to bring their disorder under control. The step by step approach detailed in the book is exactly what is needed for patients and clinicians alike. I have enthusiastically been recommending it to all of my clients who have BDD, and to colleagues interested in learning more about it. This book offers new hope to the millions of people worldwide who live with this troubling, but treatable disorder.

The BDD Workbook: Overcome Body Dysmorphic Disorder and End Body Image Obsessions

This workbook really delves into the thought processes of a person who suffers from this exhausting illness. The worksheets and exercises really cause you to challenge the beliefs which have been ingrained in your memory for decades. I would highly recommend this workbook for anyone who is self-directed and able to work through the exercises on their own.

About Stephen

My name is Stephen and I was officially diagnosed with BDD in October of 2012. I have lived with it my whole life. This blog is my story, my shame, and my path to recovery. It starts on Day 1 of my new life. To live, and love myself, to teach others how to do the same, and learn more about what it means to live with body dysmorphic disorder. Here are some resources that I use...